I am glad to announce , with my colleague psychologist Irene Fuchs from Argentina,  that since the launch of our booklet about “Communication , love and sexuality  for people living with hemophilia, their partners and families” in 2011, a lot has been done!! 

In 2012 we have on board the social worker and counselor Edward Kuebler, fantastic professional who organizes for example,  the  PEP program (Parent Empowering Parent) around the world  and is actually the Vice Chair of the Psychosocial Committee at the WFH.

The English version is ready to be published  and gained one more author!

our booklet in English!

The topics are several : from sexual development/phases always taking into account how important is to develop communication skills and the quest for a life with quality and joy. The approach is to deal with  still “taboo” topics such as  sexual choices in love,  common fears and issues related to disclosure  of different topics related  with hemophilia or not! the book is about Communication :)

A very cool  part of the booklet is that the  illustrations are made by one young man who has  severe hemophilia showing some of the best positions when having  a sexual relation to avoid bleeding or pain and enjoy !

Estou muito feliz de anunciar que desde  o lançamento do livro  ‘Amor , Sexo y Comunicación” realizado em Buenos Aires muito se ha feito! o livro traz   uma abordagem prática a partir da psicologia hospitalar, cognitiva comportamental e psicanalítica  com depoimentos de profissionais como também dos própios  portadores de hemofilia. Isso foi em 2011,  de la para ca, a licenciada Irene Fuchs ha divulgado em numerosos workshops na America latina o livro! No ano passado meu colega do comitê psico-social da Federação Mundial de HEMOFILIA e atual vice presidente, Edward Kuebler, aceitou pôr as mãos na massa para a versão Inglesa !Para 2013-14 estaremos com publicações em Inglês  para distribuir :)

Nuestro livro en EspañolO livro traz temas inéditos sobre o tema sexualidade: fases do desenvolvimento psicosexual, temas tabus, prevenção com a arte de se comunicar, e o melhor de tudo é  que um paciente desenhista ilustrou algumas das  melhores posições sexuais que são praticadas para evitar sangramentos ou driblar a dor em articulações.

About frederica cassis

My name is Frederica Dillen CASSIS, born of a Belgium mother and an Egyptian father, on the 3rd of January 1966 in Brussels, Belgium. I´ve travelled a lot, lived in many countries. Brazil is my seventh country and i live in Sao Paulo for 19 years now. Graduated in Clinical Psychology in 1991, I specialized in Junguian Psychology and in Hemophilia since then. LATEST PROJECTS: HERO (Hemophilia Experiences Results and Opportunities) sponsored by Novo Nordisk since 2009, exploring through qualitative and quantitative analysis the psychosocial issues involving People with hemophilia, their carers and the health professionals in the treatment process. check this project in my blog www.blood4.wordpress.com 2) P-TET (Pediatric Thrombosis Educational Tool) flash cards in evolution stage, for kids on anti-coagulant treatment...inspired on HEMOACTION flashcards success. 3) I am a co-author along with psychologist Irene Fuchs of a booklet called "Communication, love and sexuality for people with hemophilia, carriers and family" 4) an approved article with other colleagues for Haemophilia Journal to be published soon...(will tell after the title) 5) an on going process of a systematic review for the Cochrane Collaboration about "psychological interventions for people with hemophilia and their families" On a more personal level i have 3 three great not anymore children :) Danaê 22, Rubi 16 and Iggy 13) and i love to jogg, doing pilates, dance and read. To walk and look for shells on a beach too and I discover that i love deserts...:)

8 responses »

  1. Felicidades!!! dónde lo puedo conseguir??

  2. Congratulations for the booklet. Is there a way to download it from the internet.

    • Dear Vaibhav,
      I am working on the revision of the English translation , will peer review it and then I hope before July I will be able to send it for download.
      Meanwhile could you tell me what interested you about the subject or why do you think it is important to have such topic written about?
      it is just a way to interact more :)
      best regards
      frederica

      • Dear Frederica,

        Being a young man with hemophilia (and coming from a country where sexuality is still a taboo subject), my interest in this topic is natural. I lead the local youth group in New Delhi and I feel that its important for young men with hemophilia to know about their sexuality. However as it is not an openly talked about topic in India, I feel a very strong need for such publications which can help in educating and initiating discussions about this topic.

        During the last WFH congress, I saw you and Ed Kuebler give a presentation about sexuality. I really liked the way both of you spoke about the topic. Afterwards, attending SURO gave me a good chance to interact more with Ed. I am not a psycho-social expert, but I try to be as understanding and encouraging when discussing this topic with other young men who need information.

        Hope to learn more from you. :-)

        Warm wishes,

        Vaibhav

      • Dear Vaibhav,
        I am really glad to receive this news from you. Be sure that for us, communicators and involved in psychosocial matters,facing challenges is part of the task. But we keep the motivation and the faith strong that we are doing what we should and what we can. Congratulations to you for your work!
        So, I have good news: I am reviewing the English translation on more time (it was as you now first in Spanish and Brazilian Portuguese), I will have it peer reviewed and then be sure that you will receive the booklet.
        I´ll be in touch with you through your personal e-mail .
        I am in touch with Ed Kuebler,he is great!
        My best wishes for a soon contact,
        frederica

  3. Daiane R. says:

    Parabéns Frederica!

    Adorei a iniciativa, quando poderemos comprá-lo?

    Grande abraço.

    Daiane

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